We Have a Diagnosis! (LynnK)
posted by Lynn Kerstan
on
Friday, October 03, 2008
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It seems like months since my assigned Primary Care Physician sat across from me and told me, somewhat circuitously, that The Garden of Doom growing in my chest could not be cut down with a surgeon's instruments. Only palliative care could be offered while the Garden took me over and laid me out for good. My sister was beside me, trying to suppress her tears while she scribbled fiercely detailed notes. And though she later counseled hope and optimism, she'd heard what I heard.
That all seems a very long time ago, but it's barely three weeks since the Ultimate Deadline was laid out for me. Meantime, between weakness and ongoing pain, I wasn't absorbing things with what you might call clarity. I'm not sure who guided a followup investigation nor precisely how it developed, although I did know all that at one time. Not for a very long time, I expect. And by now, I owe hundreds of emails. If you are among the neglected, forgive me. And don't wait around for me to catch up. I'm about to be even less mentally ept than usual.
Here's the little I know for nearly sure. My oncologist says the pathology reports show me to be the victim of a not-uncommon form of Non-Hodgkins Lymphoma called Diffuse Large B Cell. A name only an oncologist could love. And since my personal oncologist describes this as "eminently treatable," I'm growing rather fond of it myself.
If we can shoulder ourselves into the schedule, I'll be starting chemo early next week. Each treatment takes two days, the second shorter than the first, after which I get three weeks for "recovery." I don't know how many of these cycles there will be, what they are giving me, or, frankly, anything else at this point.
Otherwise, life will continue on with related medical appointments (getting my lung drained again in the morning), and the ongoing struggle with Postherpetic Neuralgia. I've long since forgotten what a painless day feels like. Even a painless few hours. I just hope I haven't grown too weak to fight this next challenge.
But I'll give it my best. It seems my deadline has been extended. And frankly, nothing has seemed to me more difficult than trying to close down a crammed residence (and a life!) within a couple of months. I need all the time I can get!
Along with some fun. Before this news, with me so swollen up with edema and Doom Flowers I couldn't wear my regular clothes or shoes, I nevertheless staged a formal ceremony on the lawn in front of my apartment. The occasion was the appointment, complete with dubbing, of Thea Gurns as my Official Sherpa Porter. I've always wanted one. Nearly always needed one. And when she kept insisting on schlepping my stuff, I offered to raise her to an honored place in my entourage. She quickly accepted. To my astonishment.
I had to admit the entourage was small, as in one other irregular member who rarely shows up when needed. Alicia Rasley has long been my designated gallowglass (aide and bodyguard) but I couldn't tell you the last time she threw herself in front of a lance for me. Something of a slacker gallowglass, to be sure. But there's not exactly a queue lined up to replace her.
Every day, I give him new reasons to despair of me.
Update: Chemo starts Monday. Heeere we goooo!
Patricia Potter
Tara Taylor Quinn
Maggie Shayne
Anne Stuart
Suzanne Forster
Lynn Kerstan


















16 Comments :
Lynn,
Whatever it takes to keep you strong enough to beat this, we will find for you. There are so many of us out here, waiting to be called to action.
Keep your mind on feeling better. Those days are coming. And on your Europe trip. And more of our wine drinking dinners and intellectual debates. You are needed, my friend.
Love,
Tara
Sister Lynn: Hurray! I know, I know--odd to congratulate someone with cancer, but an "imminently treatable" cancer is the "best kind" to have. Is it not? Go forth and be well, my friend. Love, Debster
Yes, that's encouraging, it's "eminently treatable" ... you're eminent and it's treatable.
And congratulations to Thea. Lymond looks duly impressed.
Mary M
My strength is yours...no need to ask, it is there when you need it.
I think you are very brave to put yourself out here like this...but yet I believe it will be very good for you too. Good thougts, warm wish, and support are very important medicines in themselves.
Well, I'm considering this a miracle--and just the first of many. You not only have an official sherpa and a bodyguard, you have lots and lots of angels, both earthbound and otherwise, sending strength and healing and pain-free moments your way.
As Darla so beautifully put it, we're here for you. Our strength is your strength. Imagine us all around you, shielding you, a force field of love and light.
Blessings on you, Lynn! This is truly excellent news.
Suz
Lynn,
Be strong. I wear a necklace that I received when I was about 12. It has a mustard seed in the center of a glass heart and it has a small gold plaque that says "if ye have faith as a grain of mustard seed nothing shall be impossible unto you". It has been my motto for life. It can be yours as well as I know you can find the strength. It is just lying dormant until you need it.
Blessings.
Sherry
Lynn,
Sending lots and lots of warm wishes and positive, happy thoughts your way.
Cheryl
Go Lynn! Fight with all your strength and know you have all OUR strength on your side as well.
Your Storybroad friends are rooting for you.
I'm giddy, I'm so happy for this news!!!! YAY Lynn. I'm so glad and relieved and impressed and awed. And happy you're a part of, and will continue to be a part of, my experience here on earth!
Maggie
Lynn,
I'm so glad to hear they say it's treatable! As always, you are in my thoughts and prayers.
Lynn, I dreamed of you last night. You were happy and healthy and saying "eminently treatable was right!" I'm sending that thought out into the universe for you and hope it comes back triple-fold.
Hey, Lynn, it's great that the NHL is coming through for you! Keep thinking of those hunky guys whapping that puck because that's what the treatment's going to do for the blue meanie cells in you.
It is odd to feel so very happy at a cancer diagnosis, but I'm looking forward to partying with you at a conference in the future. Perhaps this time we need to get you a triumphant hockey stick!
Jo :)
Lynn,
We will be celebrating with you as you meet the challenge and win the battle. Congratulations !
Lots of prayer and healing energy surround you and strengthen you !
Love, Evermore
Lynn, blessings, prayers, and good thoughts are coming your way, every day from me. (for what that is worth) As hard as it may be, grab each day and squeeze it for all it is worth. Even if during recovery time from chemo, all you do is sit in the sun, with Sir Lymond on your lap and enjoy the rays. Sending you sunshine and rainbows (cause we know that right now it is storming) Patsi
Lynn,
I wish you the very best in this battle...my bet is on you!! I am sending many positive thoughts and wishes your way. May you be well soon!!
Hugs,
Maithe
This is such good news. Go Lynn! Please pet Lymond for me--he wins too, because you can't lose!
Laurie
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